The Rett Syndrome Program at Children’s Hospital Boston is the only specialist Rett syndrome program in New England. CHB sees more than 250 patients who have Rett syndrome and related disorders.
The physical symptoms of Rett syndrome, such as seizures, gastrointestinal problems and musculoskeletal problems, can often be alleviated and managed. The Rett Program brings together Children's physicians and therapists who are experienced in caring for children and adults with Rett syndrome.
David Lieberman, MD, PhD
Rett Syndrome Program
Children's Hospital Boston/Harvard Medical School
300 Longwood Avenue
Boston, MA 02115
Dr. Steve Kaminsky and Gordon Rich of rettsyndrome.org will be visiting Boston in March (date/location TBD) to update us on the current status of Rett research. All are invited. More details to be available shortly.
To learn more about current and past clinical trials, please visit https://reverserett.org/research/clinical-trials/