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Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities. 

RSAM Spring Meeting 
Monday, May 23,2016 (7:00P)
Please join us at the Children's Hospital Waltham (9 Hope Ave) for an informative meeting with guest speakers Representative Jeffrey Roy and Granite State Adaptive Recreation.  Visit our News and Events page for more info.

Congratulations to the Team Rett Boston Marathon Runner's! 
Monday, April 18, 2016 

As-of May 2, the team has raised $86,585. 

All funds raised will go to Rett research taking place in Massachusetts.

Its not too late to make a donation

Order your Shirt and Support the Team!

Marathon 2015
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RSAM Spring Meeting 
Monday, May 23,2016 (7:00P)

Children's Hospital Waltham 

Other Rett News, Events
and Fundraisers

Trofinetide Clinical Trial                      NOW OPEN FOR RECRUITING IN BOSTON        

Visit our Research page for more info and If you are interested in participating in the study contact Lindsay Swanson at 617-355-5230 or

Bella's Ball

Sunday, May 15, 2016

Location: Crestwood Country Club, Rehoboth, MA

"Rip It For Rett" Golf Tournament

Friday, June 24, 2016 
Location: Dunegrass Country Club, 200 Wild Dunes Way, Old Orchard Beach, ME

For more info visit

Raising a Hand for Rett - The Book

 Donate to RSAM 

Rett Syndrome Association of Massachusetts
217 South Street,
Waltham, MA  02453

RSAM is a 501(c)(3) organization.
Federal Tax ID No.: