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Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities. 

6th Annual Blue Sky Day
Saturday, October 1, 2016
Join our firefighters, cheerleaders and researchers at Harvard Medical (Longwood Ave, Boston) at 11:00 AM.  Lunch to follow at the Wyss Institute on Blackfan Ave.  

1st Annual Massachusetts Strollathon
Sunday, October 16, 2016
To register your team or make a donation, visit For more information contact 

Congratulations to the Team Rett Boston Marathon Runner's! 
Monday, April 18, 2016 

         The team raised $87,654.

All funds raised were used to support Rett research taking place in Massachusetts.

Marathon 2015
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Other Rett News, Events
and Fundraisers

Trofinetide Clinical Trial                      NOW OPEN FOR RECRUITING IN BOSTON        

Visit our Research page for more info and If you are interested in participating in the study contact Lindsay Swanson at 617-355-5230 or

Raising a Hand for Rett - The Book

 Donate to RSAM 

Rett Syndrome Association of Massachusetts
217 South Street,
Waltham, MA  02453

RSAM is a 501(c)(3) organization.
Federal Tax ID No. 04-3583648


AmazonSmile is a simple and automatic way to support RSAM every time you shop -- at no cost to you!  When you shop at, Amazon will donate 0.5% of your purchase price back to Rett Syndrome 

Association of Massachusetts!


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