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Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities. 

Boston Children's Hospital Science Blog:

A Biomarker for Rett Syndrome: Measuring Hand Movement 

Adapting commercially available wearable sensor technology, biomedical engineering researcher Heather O'Leary has created a bracelet-like device not unlike Fitbit.

RSRT Press Release:                    

Team Rett FundRacers raised over $90,000 for research in hopes that Rett syndrome can be reversed: 
The 2015 Boston Marathon Team completed the marathon but can still use your help to reach $100K on CrowdRise.  John Hancock awarded the team 8 bibs for the 2015 Marathon.  Donations to individuals or to the team can be made through CrowdRise at

See photos of the Rett Runners at our Facebook site  


Rett Family Get Together
Stay tuned! Date and location TBD.


RSAM Support Group Meeting
March 10, 2015

Blue Sky Day 

October 11, 2014

See photos at our Facebook site

 Donate to RSAM 

Rett Syndrome Association of Massachusetts
217 South Street,
Waltham, MA  02453

RSAM is a 501(c)(3) organization.
Federal Tax ID No.: