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Rett Syndrome Association of Massachusetts, Inc.

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Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.
                                                                                                                                      Please visit us on Facebook

Boston Children's Hospital Science Blog:

A Biomarker for Rett Syndrome: Measuring Hand Movement 

Adapting commercially available wearable sensor technology, biomedical engineering researcher Heather O'Leary has created a bracelet-like device not unlike Fitbit.

RSRT Press Release:                    

Team Rett FundRacers are raising money for research in hopes that Rett syndrome can be reversed: 
The 2015 Boston Marathon Team has been selected and has begun their fundraising campaign on CrowdRise.  John Hancock has awarded the team 8 bibs by John Hancock for the 2015 Marathon.  Donations to individuals or to the team can be made through CrowdRise at Press Release:                    
November 11, 2014

OCTOBER 31, 2014


Rett Family Get Together
Stay tuned! Date and location TBD.


RSAM Support Group Meeting
March 10, 2015

Blue Sky Day

October 11, 2014

(link to photos coming soon)

 Donate to RSAM 

RSAM is a 501(c)(3) organization.
Federal Tax ID No.: 04-3583648.