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Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities. 

Boston Children's Hospital Science Blog:

A Biomarker for Rett Syndrome: Measuring Hand Movement 

Adapting commercially available wearable sensor technology, biomedical engineering researcher Heather O'Leary has created a bracelet-like device not unlike Fitbit.

RSRT Press Release:                    

Marathoners Raise Money for Research
Congratulations to our RSAM Rett Racers who ran in the 2015 Boston Marathon.  Our RSAM Marathon Team raised over $90,000!  Quite an accomplishment.  This year RSAM will be using these funds to support Phase 2 of the IGF-1 Clinical Trial taking place at Boston Children’s Hospital. Thank you to all our friends and family who contributed to our Marathon Team.

Go to our Team Crowdrise page to meet
our 2015 RSAM runners and to read their

Marathon 2015
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2015 Blue Sky Day
Harvard Medical School
Longwood Ave Boston
October 24, 2015
11:00 AM 

RSAM joins the WWYG Campaign to Increase Rett Syndrome Awareness in October What Would You Give?  

ROAR Comedy Night
Somerville City Club
November 6, 2015
8:30 PM (doors open at 7 PM)

31 Nights of Lights 
Sunday night, December 13, 
“Flip the Switch” ceremony 
Prudential Mall, Center Court 
5:00 PM


RSAM Support Group Meeting
March 10, 2015

Blue Sky Day 

October 11, 2014

Blue Sky 2014
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Blue Sky 2013
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 Donate to RSAM 

Rett Syndrome Association of Massachusetts
217 South Street,
Waltham, MA  02453

RSAM is a 501(c)(3) organization.
Federal Tax ID No.: