Rett Syndrome Association of Massachusetts

Families Helping Families Living with Rett Syndrome

Other Rett News, Events
and Fundraisers

Trofinetide Clinical Trial

Visit our Research page for more info and If you are interested in participating in the study contact Lindsay Swanson at 617-355-5230 or

Upcoming RSAM Events

RSAM FAMILY PICNIC (no charge to attend)
Sunday, August 13, 2017 from 12pm to 4pm

 Elks Lodge, North Attleboro, MA
 TEAM RETT in the FALMOUTH ROAD RACE - August 20, 2017


Donate Today

At Rett Syndrome Association of Massachusetts, Inc. we are working to create hope and the opportunity for a better world. But we can only do it with your help. Join with us in our mission and donate now. 


Rett Syndrome Association of Massachusetts, Inc. (RSAM) is a non-profit organization that was founded by parents at a time when little was known about the disorder. Its mission, from its inception, has been to provide support and information to families; raise funds to accelerate biomedical research; and to raise public awareness among medical and educational communities.